Archive | April, 2012

CDF Education Conference!

30 Apr

What a successful conference!  I am sure all who attended will agree that the day of feasting and learning could not have been better.  The Celiac Disease Foundation pulled out all the stops for this year’s Annual Education Conference and Food Faire.

I had a table promoting CC Gluten Freed and got some great feedback from the gluten free community.  I am so pleased to report that many people have found the site very helpful and even inspiring!

I was lucky enough to be considered a speaker at an event where such prominent figures as Dr. Stefano Guandalini of University of Chicago Celiac Disease Center, Dr. Peter Green of Columbia University Celiac Disease Center and Dr. Gregory Harmon of the UCLA Celiac Disease Center were speaking.  I lead the Young Adult, Teen and Tween session, designing activities and giving a speech about the surprising social benefits of being gluten free, a silver lining, if you will. At the end of the session I raffled off three Kraft Mac N’s Cheese Powder bottles!  This is one of the only foods I have not found a perfect GF substitute for.  I quested for the powder (sold separately from the glutinous pasta) for days and days and am so glad I found it.  You should have seen the kids’ faces when they won the ingredients for the best Mac N’ Cheese in US history.

In addition to the great speakers and educational lectures at this event, attendees had access to over a hundred food vendors providing samples of delicious GF products.  I, personally, could not help but go back for a second serving of pizza at the Udi’s table!

I learned a lot not only from the speakers but from the gf people who stopped by my table.  For example, I met a ton of people who were diagnosed with Celiacs only after their children or grandchildren were diagnosed!  I wonder if this is because of the involvement of parents in children’s health, the quality of pediatric care in the US compared to adult care or if there is some other explanation!  I also received a lot for requests to purchase CC Gluten Freed wristbands for family members, support groups or gluten free clubs and organizations.  In response, I have made the bracelets available here! I, personally, always wear 3 of them so I can give them away if I meet a GF person on the road!  The bracelets are very fun and meaningful.  Check out the meaning behind OWN IT.

For those of you who are just joining ccglutenfreed.com after meeting me at the conference: WELCOME!  I hope you enjoy the blog.  I had such a great time at the conference.  It was a day I will never forget.

drawing a crowd at the CC Gluten Freed table!

CC Gluten Freed was located next to the University of Chicago Celiac Disease Center table!

vendor exhibits



-CC

How To Get The Most Out Of Your GF or Celiac Support Group

22 Apr

No time to read? Click here to listen to this blog post!


You may have heard of them,  you may have even been to them but are you making the most out of them?  Gluten free support groups can be very useful and a great addition to your gluten free lifestyle.  The trick is knowing how to make the most of them.  Support group meetings can vary in terms of structure and content.  All of the group meetings I have been to have consisted of an informative guest speaker, usually a leader in the GF community, informal mingling with other attendees and samples from a GF food vendor.

Are there certain things you should keep in mind in order to maximize the benefits of  attending?  Absolutely!

Here are my suggestions that I hope you adopt before attending your next, or first, GF support group meeting.

1. Bring business cards – one of the biggest emotional challenges of having Celiac Disease or gluten intolerance is the inevitable, yet probably only occasional, sense of being alone.  Finding a gluten free support group will show you that you are not alone.  Seeing it is not enough though, you need to feel it.  To do this, make some gluten free friends!  Bringing business cards to meetings makes it very easy for you to exchange contact information with the other attendees.Typically, the mingling at meetings is very informal.  You are unlikely to have a table to write on or pens and paper for trading contact info.  In addition to lack of resources, you may not have the time to have the exchange of contact information in the brief minutes allotted to mingling, especially if you have somewhere you need to be after the meeting.  Business cards are quick, to the point and a great way to help you remember someone!  If you don’t have business cards, get some personal contact cards made!  They are very inexpensive to order and super fun to design at www.vistaprint.com

2. Ask the right questions – at many GF support group meetings, group leaders schedule a guest speaker to come educate the group about various aspects of the gluten free diet.  At the Oakland Celiac Support Group I have heard from speakers such as Dr. Emily Nock, a primary care physician and Celiac Advocate at Kaiser Permanente, and Ann Whelan, the Editor-in-Chief of Gluten Free Living magazine. You want to capitalize on your opportunity to ask questions, especially considering how incredibly talented and qualified the sources at meetings tend to be.  But, what to ask?  Avoid overly personal medical questions.  Though the speaker may be a physician,they aren’t going to be able to give you solid medical advice based on one question in the middle of a group lecture.  In addition, asking personal medical questions takes away from the group’s ability to benefit from the speakers advice.  Ask more general questions that aren’t overly specific to your personal medical status.  For example, don’t ask a 3-4 minute long question that requires you reciting your medical history. Instead, ask questions like “what is the possibility of people finding a cure for Celiacs? What would a cure look like?” or “What is the current status on GF labeling laws and how do you think they will impact my health?”

3. Get to know at least one person really well each time – This goes along with the idea of bringing business cards to the meetings.  Try and establish a genuine connection with at least person at each meeting.  Of course, you won’t have time to get to know everyone which is why having business cards on hand is very helpful.  Try chatting with the person sitting next to you.  Try looking for someone who has a similar lifestyle of life context as you do. For example, if you are the mom of a Celiac kid then look for another Celiac parent to get to know.  If you are a very busy, fast paced business person look for someone who has a similar job or similar job demands.

4. Introduce yourself to the guest speaker -At the time when I heard Dr. Emily Nock speak at the Oakland Celiac Support Group, I was just beginning to consider the medical field as a potential career goal.  After her presentation, I introduced myself and asked her if I could shadow her medical practice.  Although I did not have a personal contact card, Dr. Nock took down my contact information.  I shadowed Dr. Nock for a full semester while at Cal and two years later, Dr. Nock is both my friend and my mentor.  Never miss an opportunity to network with people in the gluten see community, especially GF leaders.

5. Follow up – This is my biggest piece of advice.  Follow up with the people that you meet at these meetings. Shoot them an email or give them a call next Saturday morning.  Make sure that these connections don’t get lost in the hustle and bustle of  your life.  The friendships and connections you make at these meetings can really improve your gluten free lifestyle.  There are a ton of different ways you can follow up with people: Linked In, Twitter, Facbeook, email etc.  Choose whichever one is best for you!

If you don’t have a GF support group, I highly suggest finding one!  There are a ton of resources for you on the web.  Check out the Celiac Disease Foundation’s extensive list of GF support groups across the nation.  National Foundation for Celiac Awareness also has a database dedicated to this topic.  For more support group options try signing up for www.meetup.com.  This website is a social media site where people can form and search for groups based on their interests.  In addition to these resources you can always google your city and “gluten free support group” to find contact information for a group in your area.

Hope these tips make your next GF support group an invaluable and rewarding gluten free experience.
-CC

Gluten Free Pilgrim

13 Apr

No, I am not talking about Thanksgiving, turkeys or little white bonnets.  I am talking about someone who journeys to far away places.  One of the challenges of being on the gluten free diet is finding places to eat out with friends and family.  I can always find at least 2 or 3 great gluten free places wherever I am  but the thing is…I don’t want to be limited to 2 or 3 restaurants and neither do the other people coming to dinner.

When I say only 2 or 3 places, I mean places that are actively gluten free friendly.  There are other places around where I can ask questions, explain about cross contamination to the waiter and hope for the best but I prefer restaurants like PF Changs, CPK, Rosti Tuscan Kitchen or The Old Spaghetti Factory where I know the waitstaff and chefs have been educated about gluten and trained in safe kitchen practices.

If you want to dine at more than a couple of restaurants, you are going to have to venture out of your zip code.  I once found this incredibly frustrating.  I don’t want to be the reason that my whole family has to spend over an hour in the car just to get to a dinner place that will accommodate me.  Well, I don’t have a magic solution for the long commute, but I do have some advice: change your mentality.

The other day I really wanted to try this place in Los Angeles called Chili Addiction.  This place serves GF hamburgers, hot dogs (buns and all!) as well as delicious chili.  Only one problem — the long commute.  Instead of dwelling on the drive, I told myself to think of this as a gluten free pilgrimage.  People always say “it’s about the journey, not the destination.”  Despite being overused and somewhat corny, I decided to actively adopt this mindset when trying out a new GF restaurant.

The commute from the San Fernando Valley to West Hollywood requires driving through the canyon.  I made sure to enjoy the views – and my Mom’s company – on the way.  When you exit the gorgeous canyon, you are immediately surrounded by a jumpin’ city.  There is so much to see!

When we arrived at the restaurant we were starving!  I ordered a classic hamburger and chili cheese fries.  My burger had a bun!  What a revolutionary concept!  The restaurant was fast, affordable and delicious.  The bun was so light and fluffy I triple checked with the staff that it was gluten free.  I simply couldn’t believe how great it tasted.

 


I  highly recommend Chili Addiction to anyone who is gluten free.  They are super aware of the importance of protecting their products form cross contamination and they make all of their condiments in house.

Although I really enjoyed my dinner at Chili Addiction, this post really isn’t about the food, it is about how to make dining out less stressful and more enjoyable while on the gluten free diet.  There will be times when, in order to get foods that most people don’t think twice about in terms of accessibility, you will need to drive many, many miles.  As a gluten free person this is your reality. But, to be honest, it isn’t so bad! By being a gluten free pilgrim, you get to try new restaurants all over the city and go to new places, not simply new restaurants.

Happy dining!




-CC

Easter Holiday Survival Guide

4 Apr

Many families celebrate Easter with a dinner party.  I know in my family, the food served and attending guests are very much grounded in tradition.  Many, if not most, Celiacs are not diagnosed as children and, consequently, their family dinners and traditions may be a gluten free obstacle that they will face this Spring.  Families of Celiacs diagnosed at older ages may not be as familiar with the gluten free diet and how to accommodate their family member as a family that raised a Celiac child.

How do you work around such a challenge?  There are various reasons why trying to tweak your family dinners to be GF may be more difficult than simply telling the appointed cook not to use flour to thicken the gravy.

Here are some scenarios that may apply to you and ways you can gracefully work around them:

You are very recently diagnosed:

If you were recently diagnosed then this may be your first Easter dinner, if not your first big family dinner, since becoming gluten free.  Learning about all the complex components of the GF diet is overwhelming at the best of times, let alone during a hectic holiday filled with out of town relatives, family feuds and the like.  How can you get your family on board with your new lifestyle?

Talk specifically to the host and/or the family cook.  If you aren’t comfortable speaking to your entire family or if you simply don’t have time to explain the intricacies of the GF diet to your entire family, be smart about who you talk to! Around the holidays, time is of the essence.  Figure out who is cooking and make a plan — find places where you can substitute GF ingredients and double check all the family recipes and ingredients that will be used.

You don’t know the host well/are a new guest:

Not everyone has the time to travel to wherever their families may live. Maybe  you have recently moved to a new city and don’t know many people.  In these two situations you may be going to an Easter dinner at a new friend’s  or a friend of a friend’s house.  What if you aren’t able to get in touch with the host before the dinner party?

If this is the case, bring an entree or a substantial side dish to the party with you!  It is completely normal and, often, encouraged to bring a gift or contribution for the host of the dinner party.  Give this gift a dual purpose: a gift for the host, demonstrating incredible etiquette and something filling you can eat, demonstrating incredible preparedness.

What to bring:

There are many simple GF dishes you can bring the an Easter dinner that are filling and delicious.  Try making a quinoa dish, which will be an acceptable side dish for some and, if need be, a main entree for yourself.  I suggest this springtime  recipe for a quinoa dish!

Another easy and filling option is roasted vegetables.  This is very easy to make and is both a homey dish and a very nutritious one!  I suggest picking up fingerling potatoes, carrots and fresh beets.  Chop all the vegetables into similar sized bites and season with olive oil, garlic power, onion powder, oregano, salt and pepper.  Spread the veggies out on a cookie sheet and roast in the oven, set at 400 degrees, for ~30-40 minutes or until tender. The beets and carrots add a sweetness to the potatoes that will surely impress the host of the dinner party.

If not these dishes, I highly recommend brining either a starch (rice, quinoa, potatoes etc) or a meat/poultry dish (a whole, stuffed chicken or a small honey baked ham).  You want to bring something that is substantial enough to serve as your meal so that you are not a lone starving guest.

Other Useful Resources:

This year there are a ton of great GF resources on the web specifically for having a GF Easter.  Gluten Freeville posted a 2012 GF Ham list!  I highly suggest using this resource before purchasing a ham for a dinner party.  Last Easter, I bought a ham that was labeled GF but the glaze on the ham was NOT gluten free!  This was a tricky labeling problem that I overlooked and greatly regretted it!  Make sure you find a ham that is safe, I even suggest calling the company to double check the GF status of their product.

Enjoy some Peeps!

I love enjoying classic food items that are naturally gluten free. It makes me feel like I have a super normal and easy diet!  Peeps are an Easter classic. Though completely devoid of nutritional value, Peeps are a fun, sugary and gluten free dessert you can munch on with your friends.  To top it off, unlike many GF substitutes, they are incredibly cheap!  Bring a large pack of peeps to the Easter dinner party you attend as a dessert.  Even if the host is serving a seemingly delicious glutinous cake, I would bet my blog that the majority of guests won’t be able to pass up the nostalgic, sugary goodness that is Peeps.

Good luck with all of the dinner parties! I hope that these strategies are useful and make the holidays a bit less stressful for everyone!

-CC


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