Tag Archives: celiac disease foundation

CC Gluten Freed in 2013

3 Jan

Happy New Year! I am looking forward to a new year full of gluten-free living but before we charge ahead let’s take a look at CC Gluten Freed in 2013!

2013 was a year full of excitement and big events. I was picked up as a writer for the Gluten Intolerance Group’s printed publication, Celebrate Gluten-Free, I attended a national coalition on the hill to promote the interests of the gluten-free community and I attended some very fun awareness events throughout the year!

My biggest accomplishment this year was being picked up by GIG to be a regular contributor to their printed publication, Celebrate Gluten-Free. The wonderful staff of GIG send me writing assignments on a variety of topics that test my creativity, critical thinking skills and gluten-free knowledge. You can subscribe here. Sometimes I write pieces offering advice, sometimes I write about a personal experience or struggle with living gluten-free, whatever the topic I have given each article my all.

To subscribe to GIG’s magazine just sign up for membership here: http://www.gluten.net/product-category/memberships/

The magazine is incredibly well done and has diverse articles that will benefit even the most veteran celiacs. The winter edition (coming out soon!) features two pieces that I wrote: a piece about gluten-free weddings and a piece on dating gluten-free, the two extreme ends of the relationship spectrum! The best part about the wedding article? I got to go wedding cake testing!

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In March I attended the Digestive Disease National Coalition, heading the Maryland advocates group  and talking to Maryland’s Senators and some Representatives about policies that, if passed, would benefit our community. For example, we advocated that the Senate should continue to declare May Celiac Awareness month! You can read about my trip to the Hill here.

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I spent a few weeks working with the Celiac Disease Foundation in Los Angeles, California during the summer. My task was to re-write the information about celiac disease on their website. CDF spent a few months putting together a dynamic, user-friendly design for their  website. You can check it out here! I was honored to write information that will benefit the celiac community! It was pretty fun taking a break from my normal, colloquial writing style and writing down just the facts about what celiac disease is. As I am entering medical school in the Fall, it was great practice speaking very technically about symptoms, treatment and the like.

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While working with the Celiac Disease Foundation, I was also trying out a new diet: the raw food diet. My family and I decided to go on, what we deemed, a “raw food detox.” We spent three weeks eating only raw foods! Although it was challenging, I actually felt great! The diet forced me to rely on mostly vegetables and nuts for food which left me feeling energized and light. It was an empowering experience choosing to limit my diet instead of having my diet limited by celiac disease. Though a fun experiment, warm food definitely hits the spot during this cold winter in Washington DC but maybe I will revisit the raw food diet again during the summer.

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What better way to wrap up the summer than a baseball game? In August, I made a trip up to Philadelphia to work with the National Foundation for Celiac Awareness at their annual Phillies Gluten Free Awareness night!

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I had a blast. Not only did I get to chow down on a real Philly cheesesteak sandwich but I also got to pull the raffle ticket winners! They had a great turn out! Members of the celiac and gluten-free community came out with signs demonstrating their gluten-free pride (and love for the home-team, the Phillies).

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Although the Phillies were playing my hometown team, the Dodgers, I wore my Phillies cap to support the team that supports the gluten-free community! It was great fun and great company! The highlight? Drinking a beer (gluten-free, of course!) at the game. What an iconic experience that many gluten-free people think may be out of reach but with the efforts of organizations like NFCA, more and more baseball stadiums have gluten-free beer and hotdogs! Sometimes, you just want to enjoy the little things in life!

The highlight of 2013 for CC Gluten Freed? Attending the Gluten Intolerance Group’s Health and Wellness event in Seattle, Washington. The event is a great opportunity for me to meet many of my readers and connect with new members of the gluten-free community. I also get  to spend time with some of my favorite gluten-free vendors like Brazi Bites (cheese bread from Brazil), the Flying Apron (bakery in Seattle), Udi’s and various gluten-free breweries that are popping up along the west coast.

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Just like last year, my dad came with me to help run my booth. I gave out CC Gluten Freed bracelets, brochures, pens and print-outs of some of my more popular posts like my Gluten-Free Tiramisu Cupcake Recipe, 5 Things To Do With Kind Bars and The Best of CC Gluten Freed 2012. 


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Happy New Year, everyone!

-CC

 

Food Stars Go Gluten Free

18 Aug

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With Restaurant Week upon us in Washington DC I can’t help but think about how far the restaurant industry has come in the past few years when it comes to serving gluten-free customers!  Between the increase in demand for gluten-free products from the celiacs, the gluten intolerant and the fad dieters to the efforts of nonprofits like National Foundation For Celiac Awareness, Celiac Disease Foundation and the Gluten Intolerance Group, people living gluten-free can enjoy the delicious foodie culture that has spread across the country!

Which star chefs and popular restaurants have joined the gluten-free bandwagon? A lot!

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Two old school Food Stars, Mary Sue Milliken and Susan Feniger, offer a full gluten-free menu at all of the locations of Border Grill.  Milliken and Feniger starred in 396 episodes of Too Hot Tameles on the Food Network. Mary Sue also competed and was the first runner up in Top Chef Masters Season 3. Check out my pictures from my most recent visit to Border Grill in Downtown Los Angeles.


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Fish tacos with jicama, grapefruit, jalapeño aioli and avocado 

If you are a fan of the Food Network then you are probably familiar with Stacey Poon-Kinney, one of the final five contestants on The Next Food Network Star. Her restaurant, The Trails Neighborhood Eatery was also featured on an episode of Restaurant Impossible back in 2011. Poon-Kinney offers an extensive gluten-free menu at her restaurant including gluten-free pancakes, which, in my experience, are rarely offered at restaurants!

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Another star making delictable gluten-free offerings: Iron Chef  and restaurant owner Jose Garces. My favorite of the Garces Group restaurants is Distrito, a modern Mexican restaurant in Philadelphia. In addition to offering glutne-free options, this incredibly popular eatery can satisfy any top-notch foodie’s palate! Distrito has been trained by NFCA’s GREAT Kitchens.

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Jose Garces also had his restaurants Amada, Chifa and Tinto trained by GREAT Kitchens.  His illustrious Garces Trading Co restaurant offers a formal gluten-free menu. Here are some of the pictures from my most recent visit to Distrito!

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Stephen Starr, another wildly successful restauranteur and winner of Restauranteur of the Year by Zagat and Bon Appetit, has several restaurants that have been trained by GREAT Kitchens and offer gluten-free menus! During my last visit to Philadelphia I stopped by El Rey and enjoyed  a beautiful modern twist on a chille relleno smothered in a walnut sauce and stuffed with dried fruit, walnuts and ground beef.

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About a year ago a friend asked me how I could possibly consider myself a foodie given that I can’t eat most of the food offered by the most acclaimed chefs. Fact of the matter is, the gluten-free lifestyle is becoming more and more common. Restaurants have a financial incentive to cater to the gluten-free community because this particular foodie-niche happens to be an incredibly loyal customer base. When a restaurant makes a commitment to offering safe gluten-free options to its customers the gluten-free community talks about it. Apps like Find Me Gluten Free guide people living gluten-free directly to the doors of restaurants with gluten-free menus. When it comes to gluten-free customers, a gluten-free menu or a GREAT Kitchens logo on your restaurant door attract customers that will keep coming back.

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The gluten-free customer base is loyal and hungry so when chefs like Mary Sue Milliken and Jose Garces offer something gluten-free they are pretty much guaranteed a huge influx of new customers.

Next on my list of places to try? One of the newer Stephen Starr restaurants, Le Diplomate in Washington DC! To my fellow Washingtonians, enjoy Restaurant Week! Remember to ask the necessary questions to avoid cross-contamination while dining out! Check out this link to The Gluten Free Professional to help you become a savvy celiac diner! Check out the section called “networking” for specific tips on dining out!

-CC

Science For Celiacs

22 Jun

For many people living with Celiac Disease, having Celiacs and being an advocate for awareness often times are synonymous. We are a demographic of people who cannot eat one of the most commonly consumed foods: bread. So, naturally, when people come across a Celiac for the first time they have a lot of questions.  Wheat has played an incredibly large role in our political, religious and culinary histories. As a result, it may seem pretty odd or even unbelievable when you encounter a person biologically designed to reject it.  Whenever I meet someone who has not heard of Celiac Disease or the gluten free diet I am unfailingly asked one of three questions:

  1. What is gluten???
  2. So…what happens to you if you eat bread?
  3. Celi-what disease?

It is important to be able to answer these questions coherently and knowledgeably. Why? Because otherwise the gluten free diet gets a bad rap! If people living with Celiacs or gluten intolerance do not speak up, the media and fad-dieting celebrities control the narrative about what it means to be “gluten free”.   That being said, if you have Celiac Disease or gluten intolerance, what should you know??

A Celiac in the know should have a basic and celiac-specific understanding of Physiology, Plant Biology, Biochemistry, Immunology and Genetics. As a Science teacher and GF blogger it is about time I merged my two favorite things into a blog post!  I won’t be offended if you simply skim the rest of this post because things are about to get a bit nerdy :)

Physiology
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Physiology is the study of biological functions eg how the digestive system functions. Given that Celiac Disease is a digestive disease it is important for us to know how the digestive system works! The  purpose of the digestive system is to digest and absorb.  There is a common misconception that people with Celiac Disease struggle with digestion but this isn’t really true: we struggle with absorption.

For example, someone who is lactose intolerant cannot digest dairy products, their body cannot break it down. Celiacs are great at breaking things down, in fact, we have a whole class of biological soldiers (antibodies) that attack gluten. If this were merely a matter of digestion, the symptoms of Celiac Disease would not be so varied and at times debilitating.

Digestion is the process of breaking down food into biologically usable parts. Your cells don’t need pepperoni pizza, they need glucose, amino acids, vitamins and minerals etc. The digestive process transforms food into these usable components.  Once the food is broken down (aka digested) it will reach your small intestine, which is where the absorption takes place.
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Your small intestine is lined with villi, finger-like projections that absorb those usable components from the food into the body/blood stream.  When the villi are damaged they look stub-like and can longer efficiently absorb nutrients.  Someone with Celiac Disease may eat an incredibly healthful diet and yet not receive the benefits of those foods because their villi are damaged!  Luckily, the villi can repair themselves overtime which is why living gluten free can often reverse almost all of the pre-diagnosis symptoms. For example, I went from being severely anemic to having normal iron levels about five months into being gluten free.

Plant Biology

How many times have you answered the “what is gluten” question with “You know…bread, pasta, cookies, anything with flour…basically.” Although that simplification may be best in some contexts, it is still nice to know what it really is! Gluten is a group of proteins that is responsible for the elasticity of dough aka the chewy goodness that I sometimes miss so much.  Gluten is made up of two proteins: gliadin and gluteninin (gluten = gliadin + glutenin). Interestingly, Celiacs are only sensitive to “gliadin” but for whatever reason we use the term “gluten-free” to describe a diet that is not harmful to people with Celiac Disease.   pro-43

Did you know that wheatgrass is gluten free? The wheatgrass is immature wheat. Though the same origin, Triticum aestivum L., the grass forms before the grain and does not contain the harmful proteins we discussed above. NOTE: if you buy wheatgrass make sure it is labelled  gluten free because otherwise there is a risk that the grass has been contaminated with the mature grain.

Biochemistry

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The very first day of my Biochemistry class in college my professor warned me that I would have to memorize the structure and names for all 20 amino acids used in the body to form proteins.  Don’t worry, these structures didn’t make my list of things Celiacs should know but the basic concept that proteins are made up of a string of amino acids definitely made the list.

We know if you are Celiac you need to be gluten free. We know that gluten is made up of two proteins and Celiacs are mostly sensitive to gliadin.  So what is it about the protein called gliadin that is harmful?

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A protein is made up of a string of amino acids. The sequence, or order, of these amino acids is what determines what type of protein it is.  There is a specific part of gliadin, a sequence of 19 amino acids, that trigger the autoimmune response in Celiac patients.  Proteins with similar sequences, even if not exact, can cause reactions as well. This is why people with Celiac Disease typically cannot eat rye, barley, malt and sometimes even oats because the amino acid sequences can cause a reaction!

Immunology

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The immune system has two parts: innate immunity, the body’s first and more generic line of defense, and adaptive immunity, our specific response. When it comes to Celiac Disease we are mostly interested in adaptive immunity because it is this part of the immune system that is triggered by gluten.

In someone with Celiac Disease, the body perceives gluten as a threat and produces antibodies to attack and eliminate it called Anti-gliadin antibodies (also called AGA). You probably recognize that word from the tests you were given for your diagnosis. Some doctors will test the blood for the presence of AGA in order to determine if someone has Celiac Disease.

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Why does it matter if the body creates an antibody specific for gluten? Doesn’t that just mean that the gluten is attacked? The immune system is very complex and yet imperfect.  Autoimmune diseases are conditions where the body’s defense systems begin to attack healthy cells. In Celiac Disease, the Anti-gliadin antibodies end up attacking the lining of the small intestine (among other areas in the body), damaging the ability of the villi to absorb nutrients.

In short, the immune system creates specific proteins that target foreign and unwanted invaders in the body. People with Celiac Disease develop antibodies in response to consuming gluten that attack and destroy healthy cells in the body causing damage, inflammation and symptoms of Celiacs.

Genetics

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The reason it is important to understand the genetic aspect of Celiac Disease is all about getting people tested.  If you or a family-member are diagnosed with Celiac Disease it is really important that the rest of the family get tested as well.  If a family-member has Celiac Disease, your chances of having it are much higher than the average person in the general population. Family-members may be asymptomatic or may have symptoms that have been misdiagnosed (I used to have a juvenile arthritis diagnosis on file before going gluten free).

I can’t tell you how many of my readers have told me that they found out they needed to be gluten free because a family-member was diagnosed first. My grandmother found out she had Celiac Disease after I was diagnosed and has experience improved health since going gluten free! There is no way to get around the fact that Celiacs is genetic. I know many families that are resistant to getting tested because they do not realize that they have a risk of having or developing Celiac Disease.

Being in the know is not just important for spreading accurate awareness, it can actually help you stay motivated. When you understand what happens to the body on a molecular level in response to even trace amounts of gluten you may find yourself even more committed to taking those extra steps like avoiding cross contamination to be completely gluten free.

Have a great rest of the weekend, readers!

-CC

How To Make the Most of Celiac Awareness Month!

30 Apr

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This year I am taking Celiac Awareness Month a little more personally than years past! In March, I went to the Digestive Disease National Coalition and met with Senators to discuss Resolution 550 that officially makes May  National Celiac Awareness Month.

When talking with the Senate staff I explained that making May Celiac Awareness Month gives members of the gluten free community a great jumping off point for awareness campaigns and projects. For example, the Gluten Intolerance Group implements their Chef-To-Plate program every May that gets restaurants to display information about the gluten free diet at their establishments. NFCA’s Fuel the Family program will share family stories from the gluten free blogosphere, daily gluten free product spotlights and will be promoting a Wear Green Day! The Celiac Disease Foundation has their annual Gluten Free EXPO on the 4th and 5th of May in Pasadena, California.

We don’t need to leave all the work to the nonprofits though! There are plenty of small projects and actions you can take to promote Celiac awareness during the month of May.

I want to practice what I preach by using May as a jumping off point for my awareness efforts. Any increase in awareness, no matter how small, can make a big difference in the lives of people living gluten free. How many times have you been at a restaurant when the waiter happened to know all about the gluten free diet and cross-contamination because he knew someone who knew someone? Although there is no instant gratification when it comes to promoting awareness, our collective work really does make a difference!

I know we are all busy; however, below is a list of ideas that won’t take up too much of your time but can still help you promote awareness.  Items on this list should be able to fit into the busiest of schedules. For example, I am a first year teacher at a turnaround school in the DC Region, I am taking the MCAT on May 11 and I am applying to medical school in June but I will be doing the items on the list with asterisks* next to them.

1. **Facebook Banner – if you are a member of  any type of group that hosts events I am sure you have been asked to change your profile picture or banner to promote events.  When I was an undergraduate, my professional sorority used to make it a “sister-requirement” to change our profile pictures during Rush.  This is a simple yet super effective way to promote awareness and it only takes a few seconds! You can design your own banner or picture to display or go to this website for some pre-made banners promoting awareness!

On that note, remember to Like CC Gluten Freed on Facebook!

For the entire month of May, I am changing my banner to:

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2. **Buy a few Gluten Free shirts and wear them every Monday for the month of May (or any day, I just liked the alliteration) Here are some of the shirts I bought for May 2013. If you want to go the extra mile, buy some GF swag for family members too! I know it seems excessive but I really did order all of these items…there aren’t many perks to being gluten free, at least we have cute clothes!

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I also have the Gluten Freek shirt from Mariposa Bakery in Oakland, California amongst many others.

3. **Pinterest Challenge - I am going to post one picture to Pinterest every day for the month of May that will promote awareness.  This is my goal for Celiac Awareness Month.  I will keep you all posted with my updates!

4. Twitter - Commit to tweeting about gluten free experiences during the month of may. You can post about restaurants you go to, foods you make, people you meet, anything just keep the posts coming!

5. Blog - Last May Gluten Dude updated his blog every single day for the month of May.  This is way too big a time commitment for me but if you can do it then more power to you! It is great for boosting your creativity. In order to get ideas to write about you might end up doing some research and learn something new yourself!

6. Donate - Worried about the time commitment? The quickest way, though not cheapest, way to celebrate Celiac Awareness Month is to donate to your favorite GF nonprofit. National Foundation For Celiac Awareness, Gluten Intolerance Group and Celiac Disease Foundation are some of my favorites. They do great work to promote awareness across the country!

7. Make a basket for a friend – Reconnect with members of the gluten free community by sending them a basket! Maybe you met someone at the last gluten free expo you attended or maybe you exchanged business cards with a random gluten free person you met last week or maybe you attended a gluten free support group meeting a year ago and  still have some contacts. Follow up with these connections and send a little GF goodie basket!

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8. Go to an event - Check out this website that lists gluten free events going on around the country. Find one near you. You can also check out websites that list Celiac and/or gluten free support groups. Attend a meeting!  You can also go to http://www.meetup.com and find a MeetUp group in your area that connects gluten free locals.

9. Bake GF cupcakes for your coworkers – What better way to explain about the gluten free diet than by giving people delicious treats? This is a great way to get your coworkers to be more supportive of your lifestyle. If you can, make the frosting Green. Here is a great recipe for Tiramisu cupcakes.  Here is a review of a great GF all-purpose flour so you can convert fun recipes you find online.

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10. **Get friends and family involved  – The best way to really understand what it is like to live with Celiac Disease is to actually try being gluten free for a day.  Have a friend or family member order gluten free while dining out for a week even if they aren’t celiac.  When I first started to show signs that I was struggling with being gluten free, my uncle decided to try being gluten free to see what the problem was.  It then became clear to him how challenging it truly is. Cross-contamination issues, awareness issues, dining out, social problems that arise because of being gluten free are all among the list of challenges that people with Celiac Disease or gluten intolerance face. These issues are pretty invisible to the average Joe, so get your family or friends informed by teaching them how to live gluten free, even if just for a week. The only way to truly get it is to live it.

Happy Celiac Awareness Month!

-CC

This Week On The Hill: Celiac Disease and Politics

4 Mar




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When I moved to Washington DC to teach 7th grade Science I never thought that I would end up in the offices of Senators and members of the House promoting legislation that will benefit the gluten free community. Advocating for the gluten free community is one of my greatest passions, it is why I started this blog, go to events and volunteer for many of the gluten free and/or Celiac nonprofits in the United States, but I never thought I would have the ear of the US government.

The Digestive Disease National Coalition held its annual public forum, uniting people from across the digestive disease spectrum for one cause: get our needs on Congress’s radar. DDNC held multiple informational lectures on Sunday preparing the volunteer advocates for our day on the Hill. Sunday night ended in an amazing Welcome Reception. I never expected to worry about over eating at a Digestive Disease event but the food was incredible and 100% gluten free despite the fact that Celiac Disease is only a small subset of the overall coalition. Katz provided the gluten free desserts as well as toast and muffins for breakfast the next day.

The Digestive Disease National Coalition unites people advocating for the treatment and prevention of conditions ranging from colorectal cancer to pancreatisis to gastro paresis to Celiac Disease to Chrons and much much more. The showing of volunteers was truly inspiring because we had policy makers, presidents of nonprofit organizations, patients and the families of patients all working together to promote legislation that will help cure, treat and prevent digestive diseases. I met cancer survivors who showed up to support people still fighting for their lives. I worked with people who were physically exhausted by the end of the day because they are living with serious chronic illnesses. The solidarity demonstrated by the digestive disease community is something to be revered.

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Although I am from California, I was representing the state of Maryland today, my current residence. I was happy to be with Team Maryland because Marilyn Geller, Chief Operating Officer of the Celiac Disease Foundation, was here representing the political needs of Californians living with Celiac Disease. Alice Bast, president of National Foundation for Celiac Awareness, was here representing Pennsylvania along with a small cohort of other members of NFCA. I was very proud to be a part of the Celiac cohort present at DDNC.

DDNC divided our coalition by state, forming teams of around six people. The teams were responsible for planning what would be pushed for during our meetings with Senators and Representatives and had to elect a team leader to facilitate the discussions. I was elected leader for Team Maryland which was both humbling, terrifying and exhilarating.

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I met with the offices of Senator Mikulsi, Senator Cardin, Representative Ruppersberger and Representative Van Hollen. The main goal of our visit was to push for an increase in National Institute of Health funding from $31 billion to $32 billion. Honestly, it was an easy sell given the fact that the people I met with were democrats, on various health committees and the NIH is located in Maryland so its funding directly impacts the state by increasing jobs in the health field.

You may be wondering what can Congress do for someone living with Celiac Disease. That is a fair question, unlike many diseases and conditions out there, Celiacs doesn’t have a very long or involved legislative agenda, something the gluten free community hopes to change in the next few years. However, there are a few issues that are pretty significant: 1. Gluten Free Labeling Laws 2. National Celiac Awareness Month (May)

Currently, the gluten free labeling bill is being reviewed in the Office of Management and Budget which is great. It should get sent back to the FDA soon for approval. The main issue I focused on in my Congressional visits was the declaration of May as Celiac Awareness Month.

In a time when budgets are tight and sequestration has broken the hearts of many members of Congress, pushing for meaningful legislation that doesn’t cost Congress a dime is pretty heart warming business. There is no reason for Congress not to proclaim May as National Celiac Awareness Month; however, there is a risk that this issue gets overlooked given the complicated political climate. My goal was to get this House and Senate Resolution on their radar.

I explained to the members of Congress that Celiac Awareness Month is incredibly important to our community. For one thing, the biggest challenge with living gluten free is the overall lack of awareness in the general population about the condition. Celiac Awareness Month helps get the word out because not only does the government get involved but it gives nonprofits like Celiac Disease Foundation, National Foundation for Celiac Awareness and the Gluten Intolerance Group a wonderful platform for awareness campaigns during the month of May. For example, last year GIG was able to reach over eight million people through their Chef to Plate program that has restaurants that currently offer gluten free menus promote Celiac and GF awareness for the month of May.

In addition to helping people currently diagnosed with Celiacs or gluten intolerance, declaring May as an official Celiac Awareness Month can help us increase the number of accurate diagnoses. This is where I got the attention of Congress: misdiagnosed Celiac patients are a drain on the economy. Before diagnosis, many Celiacs see close to ten physicians, racking up medical bills. Additionally, they are usually prescribed medications to treat symptoms that could be completely eradicated by following a gluten free diet. They undergo expensive procedures like endoscopies, blood tests, colonoscopies etc racking up more and more medical bills, potentially going into debt. Furthermore, undiagnosed people tend to be very sick, they may have to leave the workforce, start getting disability checks from the government or declare themselves as unemployed.

Personally, I feel like the quality of life arguments should be enough to tug at the heart strings of members of Congress but if not I am happy to make arguments that tug on the purse strings, and those arguments happen to quite plentiful.

I found overwhelming support for the Celiac Awareness Month Resolution. The staff aides asked me several follow up questions and even asked me for my contact information so they could get more information for their Senator on this issue.

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The Kennedy Caucus Room

I had such a wonderful time. Not only did I meet great people, true champions for their causes, but I got to spend time with NFCA and CDF as well as eat amazing food. I know the food is the least important part of the day but I have to admit it really was amazing to see gluten free accommodations made so efficiently and without error. The luncheon held in the Kennedy Caucus Room was a sandwich buffet that had gluten free and gluten-containing options but avoided cross contamination by separating and labeling the types of bread and providing condiments in packets instead of a common serving bowl and a knife to spread onto the bread.

The people I met today were so inspiring because many of them are patients who came out to represent the needs of people living with their conditions. These are people who took off work in order to promote a good cause, people who were willing to put themselves on the spot and speak to members of Congress about very personal matters. I have always said how much I love the gluten free community because it is such a supportive, connected and united group of people but what I didn’t know is that we have a host of brothers and sisters out there living with digestive diseases who are fighting the same battles for quality of life. I’m proud to be gluten free and proud to be a part of DDNC!

Consider signing up for the Digestive Disease National Coalition next year! It is an experience worth having!!

-CC

Gluten Free New Year’s Resolution 2013

30 Dec

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This is my second, and now annual, Celiac/gluten-free New Year’s Resolution post on CC Gluten Freed. The gluten free diet is so much more than a diet. In fact, I usually describe myself as “being gluten free” as opposed to following a gluten free diet. Semantics, yes, but an important point none-the-less. Being gluten free means adapting a whole new relationship to food, something that shapes our every day lives, holidays and traditions. Considering how complicated and challenging being gluten free can be, it seems appropriate to make our New Year’s Resolutions at least related to improving our health and gluten free lifestyle.

Last year I had a slue of NYRs all about improving my gluten free lifestyle. You can check out last year’s list here but in summary, I decided to:

1. Be (even more) gluten free – this means making smart, safe choices at restaurants like getting a salad instead of french fries due to risk of cross contamination.

2. Become informed — I vowed to start following GF blogs so that I can stay current on what other GF advocates are up to.

3. Get techy — there are many phone apps out there that make being gluten free much simpler. I decided to start using those applications including, my favorite, Find Me Gluten Free, an app that takes your GPS location and gives you a list of GFF (gluten free friendly) places nearby.

I wrote a follow-up last June about how I was doing with my NYRs and, I swear this to be true, I was pretty good about staying committed. In years past my new year convictions have always been more like token resolutions. “I will go to the gym every day!” or “I will eat salad at every single meal!” Though enthused, I never seemed to follow through with my generic resolutions. The problem? Conviction. I did not take the time to hash out the reasons why the resolutions were meaningful to me and, not surprisingly, they fell to the way side as the year started getting busy and hectic. I am proud to announce that for 2012 I successfully adopted all of my GF-NYRs and improved my gluten free life as a result.

My resolution this year is much simpler than my complex list of 2012 gluten free NYRs. This year has to do with defense and preparedness. The ability to absorb nutrients is often more limited in someone with Celiac Disease compared to the average Joe. Here’s why: the gluten free diet only works by completly eliminating gluten, not by merely limiting it. Many newly diagnosed believe that a low gluten diet will have close to the same benefits as being exclusively gluten free and that, my friends, is a misconception. When people think of a “diet’ they typically think of weight loss and we all know that if we limit our caloric intake we will lose weight. The more calories we restrict, the more weight that will be lost. Disclaimer: this is an over simplification of metabolism and weight loss but, in simplest terms, the relationship between caloric intake and weight loss is directly proportional whereas the relationship between nutrient absorption and gluten intake is more complicated and convoluted. Even trace amounts of gluten can trigger the production of counterproductive antibodies that will damage your small intestine. My point is that if you kind of diet, you will kind of lose weight whereas if you are kind of gluten free you will not be kind of symptom free, you will remain in the pain and state of malnutrition that originally provided hints for your diagnosis.

Vitamins-For-Acne

Even compulsive Celiacs like myself (I say that in the most endearing way possible) cannot completely avoid gluten due to cross-contamination and accidents that will inevitably occur despite your best efforts. How can we prepare our bodies for such encounters? What can we do to compensate for the fact that we may not be absorbing nutrients as efficiently as a none Celiac?

multivitamins-good-for-me-1

My NYR for 2013 is to take a daily vitamin, religiously, strictly and obligatorily. We have all heard doctors, moms and the like push us to take a daily vitamin but how many of you actually do it every day? I am super health conscious and still happily skip swallowing the disgusting smelling pellet of nutrients frequently. As a Celiac, I need all the nutrition I can get. If I don’t pay close attention to my diet, I cannot guarantee that I am getting all of the vitamins and minerals I need on a daily basis, deplting my body’s supplies and holding myself back from better health.

This year, starting January 1,2013 I will be taking my daily vitamin every morning, even if it is an unpleasant way to start the day. I have decided on taking Multi Vites Gummies. The benefit is that it is labeled as gluten free and the taste and texture of the vitamin but it does not have iron which means I will need to go the extra mile and buy an iron supplement as well. I advise not skipping out on the iron. Iron is essential to your body running properly, it is found in every cell of your body, helps with oxygenation and, if you don’t have enough iron in your body, you may experience fatigue.

Make sure the vitamin you pick is labeled gluten free!! I read through the ingredients on a gummy vitamin made by One-A-Day and concluded it was GF only to find that the allergen label said Contains Wheat! There are so many odd ingredients in vitamins that we may not recognize a potentially gluten containing ingredient so go for something with a GF label!

You may think I am being too picky, I mean come on, it is just a vitamin! Keep in mind that this is something that will start off my day for the next 365 days. The decision is not a small one! What I decide to take will impact my year and potentially my health. I want to make sure I make an informed decision.

If you are really interested in supplements and daily vitamins, another great choice for a Celiac is Fish Oil/omega 3s. The fish oil supplements work to combat inflammation in the body. Celiacs is an inflammatory condition: the antibodies we generate in response to consuming gluten cause a lot of inflammation in the body (thus the arthritis many experience prior to diagnose).

fish-oil

I know it may not be enjoyable to have a regime of pills every morning but think of it this way: we have a disease where the treatment is not a pill cocktail but rather a diet. Even though being gluten free is challenging we are very lucky not to have to deal with side effects and financial expenses associated with prescription medications like the price of seeing the doctor to get your prescription followed by the actual price of the medication. As far as excuses go, we don’t have many with merit to not take a daily vitamin especially considering the nature of Celiac Disease in relation to absorption and nutrition.
Like last year, you can expect a follow up from me in June 2013! In the spirit of no-secrets-blogging, I will even post a copy of my blood work from 2012 compared to 2013 to see if the daily vitamin is making a difference!

Cheers to a new year and to preventative care and newly improved health!

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-CC

Happy-New-Year1

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Gluten Free At The Spa

30 May

After four grueling years at UC Berkeley, I have finished my degree in Public Health.  My reward?  A relaxing vacation at the spa, Rancho La Puerta.  Located in Tecate, Mexico, this spa focuses on fitness, wellness and nutrition. Being gluten free makes total relaxation difficult to achieve even when at a spa.  Overall, I loved my experience at the Ranch and took home some interesting insights that I hope will improve my gluten free experience.

Insight #1 Constant Vigilance

Although I often write about the importance of focus and effort when it comes to being gluten free eg reading labels on products you’ve bought a thousand times or asking about cross-contamination even when you think the dish is safe, I thought that a place committed to health with a focus on food might be an exception. I thought I could drop my guard. What I found at Rancho La Puerta is that this is simply not the case.

While at the Ranch, I saw a poster advertising their “Gluten Free Thursday” cooking class.  Here is what happened:

The cooking classes at the spa are usually taught by their Executive Chef, Denise Roa. However, once a week the spa invites guest chefs to teach.  This week, on Gluten Free Thursday, the spa had invited Romney Steele aka Nani, the granddaughter of the founders of the restaurant Nepenthe in Big Sur, California.  The cooking class was set up so that groups of two spa guests would make one dish using a recipe provided by Nani.

I was working with my Aunt Celia on a baked Sea Bass dish with an orange and tarragon relish.  The menu was out of this world.  All of the ingredients were picked fresh from the Ranch’s vegetable garden.  In fact, before starting the class, the spa guests had to go pick (literally) their ingredients from the garden.

The cooking school’s main classroom

All of the recipes were gluten free and things went smoothly for the most part until we encountered a problem: Nani included a recipe for a pea puree that needed some form of chip/starch-medium to eat.  Because this was overlooked when preparing the class, Nani asked one of the workers to go grab some pita bread from the back for the dish.  See the problem?

If someone had blindly accepted the sign on the door saying “Gluten Free Thursday” they might not even think to ask if the pita bread was gluten free.  My Aunt and I quickly noticed and spoke to Nani about the gluten situation to which she replied “Well, you don’t have to eat that dish.”  Despite this discouragement, the Executive Chef, Denise, was horrified at the lapse in gluten free practice and grabbed and grilled some corn tortillas to replace the pita bread.

I don’t usually post recipes but two of the GF dishes we made were simply too good not to post.  If interested in some of the recipes I cooked during this class click here for the Quinoa with Cumber and Mint recipe and for the roasted Sea Bass with Orange-Tarragon Relish recipe.

The take away point? Even when places advertise something as gluten free remain vigilant.

Insight #2 Simple Healthful Foods Are The Way To Go

I have read this advice on many blogs, pamphlets, books and websites but I never really understood it.  Ordering simple, healthful dishes can make being gluten free a lot simpler.   At the Ranch, I found that this was absolutely true. Why is it not until now that I experienced the ease that accompanies simply prepared meals?  Simple foods are hard to find at restaurants!

At the spa every dish was made with ingredients found in their gardens or grown within a 30 mile radius of the Ranch.  When you looked at the meal, you could tell what components made up the dish.  Of course, you should always check about sauces and ingredients but I noticed that dishes that are truly simple and truly healthful aren’t muddled with questionable ingredients.  The Beet and Basil Salad was a salad made up of…well, beets and basil.  The extravagant, calorie-laden entrees that you find at most restaurants make being gluten free so complicated!  If I saw  “Carrot Soup” on a menu at most restaurants, I would not order it.  It may have flour as a thickener, contain malt vinegar or come garnished with fried onion crisps. At the Ranch, I knew the Carrot Soup was made of carrots and more carrots.

Beet soup served at the ranch with a fresh flower from the garden as garnish


I haven’t quite worked out how to use my new insight about simple, healthful foods to improve my gluten free lifestyle but when I do, I’ll be sure to post.  For now, I am simplifying the meals I make at home and trying to choose simple items at restaurants but still accompany my order with a long series of questions.

Insight #3 Apparently, Being Gluten Free Is Hard, So Be Nice To Yourself!

Rancho La Puerta is a spa dedicated to health and fitness. The spa’s clientele are hyper-aware of their diets and have strict exercise regimes.  These people demonstrate the type of dietary discipline I can only dream of.  They eat only what they need. In other words, teeny tiny portions.  They limit their sugar intake, their meat consumption and their dairy consumption.  They exercise every day and, when given the choice, choose the salad entrée over the hamburger with fries.

Despite the fact that I found their discipline incredible and something to aspire to, I overheard conversation after conversation about how people had “tried to go gluten free but it was too hard.”  These insanely disciplined and professionally successful people admitted that being gluten free was too much of a challenge!  One woman said “I felt so great after that month but I just couldn’t keep it up.”

View of Villa Sol 2, my room at the ranch

It was so nice and refreshing to hear other people commenting about the difficulty of being gluten free.  It is a thankless job, demanding self-discipline, constant vigilance, intelligence and the ability to not only articulate your needs effectively but to advocate for your health in the face of constant obstacles.  It is funny but talking to the health nuts at the spa about the gluten free diet made me kind of proud that I am gluten free.

Take away point? Every now and then, take a moment to appreciate yourself and all the work you put in to being gluten free.  Most people don’t know how much effort it takes to truly be GF.  Just remember to be kind to yourself and be proud of the fact that you are gluten free.

Although I couldn’t help but think about my blog while at the spa, I did manage to relax and decompress from four tough years at UC Berkeley.  I hope to bring my insights from the spa home with me by practicing constant vigilance, choosing simple healthful meals and appreciating my GF efforts and I hope that you do too!

View from my morning hike to the garden for breakfast

-(the new relaxed) CC

CDF Education Conference!

30 Apr

What a successful conference!  I am sure all who attended will agree that the day of feasting and learning could not have been better.  The Celiac Disease Foundation pulled out all the stops for this year’s Annual Education Conference and Food Faire.

I had a table promoting CC Gluten Freed and got some great feedback from the gluten free community.  I am so pleased to report that many people have found the site very helpful and even inspiring!

I was lucky enough to be considered a speaker at an event where such prominent figures as Dr. Stefano Guandalini of University of Chicago Celiac Disease Center, Dr. Peter Green of Columbia University Celiac Disease Center and Dr. Gregory Harmon of the UCLA Celiac Disease Center were speaking.  I lead the Young Adult, Teen and Tween session, designing activities and giving a speech about the surprising social benefits of being gluten free, a silver lining, if you will. At the end of the session I raffled off three Kraft Mac N’s Cheese Powder bottles!  This is one of the only foods I have not found a perfect GF substitute for.  I quested for the powder (sold separately from the glutinous pasta) for days and days and am so glad I found it.  You should have seen the kids’ faces when they won the ingredients for the best Mac N’ Cheese in US history.

In addition to the great speakers and educational lectures at this event, attendees had access to over a hundred food vendors providing samples of delicious GF products.  I, personally, could not help but go back for a second serving of pizza at the Udi’s table!

I learned a lot not only from the speakers but from the gf people who stopped by my table.  For example, I met a ton of people who were diagnosed with Celiacs only after their children or grandchildren were diagnosed!  I wonder if this is because of the involvement of parents in children’s health, the quality of pediatric care in the US compared to adult care or if there is some other explanation!  I also received a lot for requests to purchase CC Gluten Freed wristbands for family members, support groups or gluten free clubs and organizations.  In response, I have made the bracelets available here! I, personally, always wear 3 of them so I can give them away if I meet a GF person on the road!  The bracelets are very fun and meaningful.  Check out the meaning behind OWN IT.

For those of you who are just joining ccglutenfreed.com after meeting me at the conference: WELCOME!  I hope you enjoy the blog.  I had such a great time at the conference.  It was a day I will never forget.

drawing a crowd at the CC Gluten Freed table!

CC Gluten Freed was located next to the University of Chicago Celiac Disease Center table!

vendor exhibits



-CC

How To Get The Most Out Of Your GF or Celiac Support Group

22 Apr

No time to read? Click here to listen to this blog post!


You may have heard of them,  you may have even been to them but are you making the most out of them?  Gluten free support groups can be very useful and a great addition to your gluten free lifestyle.  The trick is knowing how to make the most of them.  Support group meetings can vary in terms of structure and content.  All of the group meetings I have been to have consisted of an informative guest speaker, usually a leader in the GF community, informal mingling with other attendees and samples from a GF food vendor.

Are there certain things you should keep in mind in order to maximize the benefits of  attending?  Absolutely!

Here are my suggestions that I hope you adopt before attending your next, or first, GF support group meeting.

1. Bring business cards – one of the biggest emotional challenges of having Celiac Disease or gluten intolerance is the inevitable, yet probably only occasional, sense of being alone.  Finding a gluten free support group will show you that you are not alone.  Seeing it is not enough though, you need to feel it.  To do this, make some gluten free friends!  Bringing business cards to meetings makes it very easy for you to exchange contact information with the other attendees.Typically, the mingling at meetings is very informal.  You are unlikely to have a table to write on or pens and paper for trading contact info.  In addition to lack of resources, you may not have the time to have the exchange of contact information in the brief minutes allotted to mingling, especially if you have somewhere you need to be after the meeting.  Business cards are quick, to the point and a great way to help you remember someone!  If you don’t have business cards, get some personal contact cards made!  They are very inexpensive to order and super fun to design at www.vistaprint.com

2. Ask the right questions – at many GF support group meetings, group leaders schedule a guest speaker to come educate the group about various aspects of the gluten free diet.  At the Oakland Celiac Support Group I have heard from speakers such as Dr. Emily Nock, a primary care physician and Celiac Advocate at Kaiser Permanente, and Ann Whelan, the Editor-in-Chief of Gluten Free Living magazine. You want to capitalize on your opportunity to ask questions, especially considering how incredibly talented and qualified the sources at meetings tend to be.  But, what to ask?  Avoid overly personal medical questions.  Though the speaker may be a physician,they aren’t going to be able to give you solid medical advice based on one question in the middle of a group lecture.  In addition, asking personal medical questions takes away from the group’s ability to benefit from the speakers advice.  Ask more general questions that aren’t overly specific to your personal medical status.  For example, don’t ask a 3-4 minute long question that requires you reciting your medical history. Instead, ask questions like “what is the possibility of people finding a cure for Celiacs? What would a cure look like?” or “What is the current status on GF labeling laws and how do you think they will impact my health?”

3. Get to know at least one person really well each time – This goes along with the idea of bringing business cards to the meetings.  Try and establish a genuine connection with at least person at each meeting.  Of course, you won’t have time to get to know everyone which is why having business cards on hand is very helpful.  Try chatting with the person sitting next to you.  Try looking for someone who has a similar lifestyle of life context as you do. For example, if you are the mom of a Celiac kid then look for another Celiac parent to get to know.  If you are a very busy, fast paced business person look for someone who has a similar job or similar job demands.

4. Introduce yourself to the guest speaker -At the time when I heard Dr. Emily Nock speak at the Oakland Celiac Support Group, I was just beginning to consider the medical field as a potential career goal.  After her presentation, I introduced myself and asked her if I could shadow her medical practice.  Although I did not have a personal contact card, Dr. Nock took down my contact information.  I shadowed Dr. Nock for a full semester while at Cal and two years later, Dr. Nock is both my friend and my mentor.  Never miss an opportunity to network with people in the gluten see community, especially GF leaders.

5. Follow up – This is my biggest piece of advice.  Follow up with the people that you meet at these meetings. Shoot them an email or give them a call next Saturday morning.  Make sure that these connections don’t get lost in the hustle and bustle of  your life.  The friendships and connections you make at these meetings can really improve your gluten free lifestyle.  There are a ton of different ways you can follow up with people: Linked In, Twitter, Facbeook, email etc.  Choose whichever one is best for you!

If you don’t have a GF support group, I highly suggest finding one!  There are a ton of resources for you on the web.  Check out the Celiac Disease Foundation’s extensive list of GF support groups across the nation.  National Foundation for Celiac Awareness also has a database dedicated to this topic.  For more support group options try signing up for www.meetup.com.  This website is a social media site where people can form and search for groups based on their interests.  In addition to these resources you can always google your city and “gluten free support group” to find contact information for a group in your area.

Hope these tips make your next GF support group an invaluable and rewarding gluten free experience.
-CC
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